Cystic Fibrosis Winter Beach Blast
"Party for Breath"
We Want Corporate Sponsors!
Know of any? Get a Corporate Sponsor for $1000 or more and YOUR name will be placed on our new "Boardwalk for a Cure."
Mark your calendar for February 20, 2016
Is the Winter Beach Blast just another ’Charity Fundraiser’? Not exactly!! This event features fantastic entertainment, finger food, great silent auction items to bid on, and plenty of attractive drawing items. Adults only please.
Event Address: 5055 Ann Arbor Saline Road, Ann Arbor MI 48103
Event time: 6:30pm - 1am
Bill, Wendy, Renee and Dan
OUR MISSION: To promote awareness and educate people about CF and to raise money to fund research so that we can expand the lives of those with Cystic Fibrosis. Renee, Dan, Bill and Wendy
OUR STORY: In the week prior to Halloween in 2003, Amanda Dooley, the youngest daughter of Dan and Renee Dooley was hospitalized with pneumonia. An observant doctor noticed clubbing in Amanda's fingernails and started asking questions. Clubbing in the fingers was unfamiliar to Dan and Renee, but it was explained and a symptom of Cystic Fibrosis. Amanda was given the salt test and it was determined that she had the genetic disease that is passed on by the parents. Both of Amanda's older siblings, Julia and Kyle needed to be tested. Kyle's results were negative, but Julia was positive.
What did this mean to the Dooley family? What is Cystic Fibrosis? What is the prognosis? What is being done in the research and development for this disease? The local CF Center at the University of Michigan Hospitals directed them to the Cystic Fibrosis Foundation for answers.
What did they find out? The Cystic Fibrosis Foundation is the world?s leader in the search for a cure for cystic fibrosis. They fund more CF research than any other organization, and nearly every CF drug available today was made possible because of the Foundation's support.
The CFF is a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle with a focus on supporting the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.
It was quite evident at the time that recent research was effective, and that the progress achieved in the past two decades was amazing, allowing those with CF to live past elementary school and possibly into adulthood. With this sense of promise, Wendy Beardsley came up with the idea to help the cause with a community fundraiser and the Winter Beach Blast Party for Breath was born.
In early 2004, a near capacity crowd of more than 200 friends and family gathered at the UAW Hall in Saline and raised funds in excess of $20,000 to be donated to the CFF for continued research and developments. Since that time, our annual events have grown to fill the Washtenaw Farm Council Grounds building with attendance usually around 400 people and fundraising success in total of more than $200,000. And despite this fantastic success, the event itself has kept its simple foundation and fun environment.
We have phenomenal entertainment, food and treats and the support of so many friends in decorating and donating to keep our costs to a minimum so that more than 90% of the ticket sales and donations go directly to the Cystic Fibrosis Foundation to advance research in pursuit of progress so that some day CF will stand for Cure Found!
And most importantly, Amanda and Julia are doing well living with CF as are many others who find comfort and knowledge as a result of this party and the progress and education it funds.
The health and well-being of people with cystic fibrosis is our top priority. Medical evidence shows that certain bacteria can be passed between individuals who have CF and can lead to worse symptoms and speed decline in lung function. To limit the serious risk of cross-infection between people with CF, only one person with CF may be invited to attend the indoor portion of each CF Foundation-sponsored event. For the outdoor portion of the event, people with CF should maintain a distance of at least 6 feet from each other.Please note: People with CF and their families should be aware that individuals with CF might choose to attend Foundation events or meetings without notifying event organizers. We strongly discourage this; however, we cannot guarantee that only one person with CF will be present at any indoor Foundation event. For more information, please call us at 248-269-8759.
- What is Cystic Fibrosis?
- Buy Tickets /Make A Donation
- Print Ticket Order Form
- Cystic Fibrosis Foundation
- Email Wendy Beardsley
Corporate Sponsorship Opportunities
- Contact Wendy Bearsdley at firstname.lastname@example.org or 734-429-3028